CCSVI-A. A call to clinicans and scientists to vocalise in an Internet age

AR Gafson, G Giovannoni - Multiple Sclerosis and Related Disorders, 2014 - Elsevier
… from the scientific community. Our findings call for a concerted effort for clinicians and
scientists to engage with the public to ensure that uptake and spread of scientific discoveries via …

Neurology and the Internet: a review

M Moccia, F Brigo, G Tedeschi, S Bonavita… - … Sciences, 2018 - Springer
Nowadays, the Internet is the major source to obtain information about diseases and their
treatments. The Internet is gaining relevance in the neurological setting, considering the …

Professionalism in the digital age

A Mostaghimi, BH Crotty - Annals of Internal Medicine, 2011 - acpjournals.org
… , combined with the ease of finding information online, can blur personal and work identities…
in the information age. A professional approach is imperative in this digital age in order to …

Using Social Media to build a Counter-Power Movement: Multiple Sclerosis and CCSVI, a Case Study

A Bocchino - 2022 - westminsterresearch.westminster.ac …
… what it could become, but I knew that because of published scientific research, it …
representation on the difference between what is called Web 1.0 and Web 2.0. Web

Public engagement and neurology: An update

L Lavorgna, F Brigo, S Esposito, G Abbadessa… - Brain Sciences, 2021 - mdpi.com
information, and contrasting misinformation [61]. The Italian counterpart was an online
community of pwMS called … for a group of researchers and clinicians dedicated to migraine and …

[HTML][HTML] Knowledge, evidence, expertise? The epistemics of experience in contemporary healthcare

F Mazanderani, T Noorani… - Evidence & …, 2020 - bristoluniversitypressdigital.com
… within a review of social science literature on the relationship … (albeit in ways that many
scientists and clinicians would have … evidence – what we have called expertise of experience; for …

From embodied risk to embodying hope: Therapeutic experimentation and experiential information sharing in a contested intervention for Multiple Sclerosis

F Mazanderani, J Kelly, A Ducey - BioSocieties, 2018 - Springer
… This paper explores the latter perspective through the case of the so-called ‘liberation …
This paper contributes to social science research on people’s experiences of controversial …

[HTML][HTML] Public funding and open access to research: a review of Canadian multiple sclerosis research

C Bakker, C Stephenson, E Stephenson… - … of medical Internet …, 2017 - jmir.org
… OA full-text availability of scientific articles by Canadian researchers funded between 2009
and … CCSVI-A. A call to clinicans and scientists to vocalise in an Internet age. Mult Scler Relat …

Perception of risk and shared decision making process in multiple sclerosis

E Cocco, A Caoci, L Lorefice… - Expert Review of …, 2017 - Taylor & Francis
… SDM is a collaborative communication process between clinicians and patients that combines
the best scientific evidence available with the pwMSs’ values and preferences to obtain …

[HTML][HTML] Assessing the methods, tools, and statistical approaches in Google Trends research: systematic review

A Mavragani, G Ochoa, KP Tsagarakis - Journal of Medical Internet …, 2018 - jmir.org
Researchers have placed a significant focus on examining Web-based search queries for
health and medicine related topics [27]. Data from Google Trends have been shown to be …